Welcome to the Primary Care for Patients with Intellectual and Developmental Disabilities Elective

Description

The Primary Care for Patients with Intellectual and Developmental Disabilities Elective is an introductory rotation to the care for patients with a variety of developmental and intellectual disabilities in the outpatient setting. Throughout the course, residents will have the opportunity to provide direct medical care as well as participate in off-site experiences including visiting group homes and workshops, attending specialty medical and psychiatric clinics, etc.

One month prior to the rotation, residents will meet with Dr. Lauren Wang to discuss specific goals and interests, providing opportunities to adapt the rotation to the specific learning needs. Residents may adapt to permit time for project time, increase clinical opportunities, or modification of clinical opportunities (increased psych for example). Below is a schedule template which can be modified as needed to meet resident's learning goals. 

The Primary Care for Patients with Intellectual and Developmental Disabilities Elective is offered for all second year and up residents as either a 2-week block or longitudinal elective. If interested, please submit a request form!

Schedule Template

Monday AM: spent at a variety of subspecialty clinics (CCHMC, epilepsy, PM&R, etc)
Monday PM: subspecialty clinics vs. project time (includes time spent at DDBP library at CCHMC)
Tuesday AM: UC Health Primary Care Burnet Ave
Tuesday PM: UC Health Primary Care Burnet Ave vs. project time
Wednesday AM: UC Health Primary Care Burnet Ave
Wednesday PM: Project time
Thursday AM: Psychiatry clinic and Community agency experiences*
Friday AM: UC Health Primary Care Burnet Ave
Friday PM: Movies (4 documentaries have been selected for the course, but can substitute additional project time in place of movie time)

Please note: Dr. Wang and Dr. Freeman both practice at UC Health Primary Care Burnet Ave and have a higher population of people with disabilities, but when working with them, you will also see general family medicine patients. 


Note: 3-4 FMC Sessions is required per week
*includes visiting a group home, visiting a workshop, spending time with a case manager at Hamilton County Board of Developmental Disabilities, visiting Southwest Ohio Developmental Center, visiting Starfire, etc. Resident's individual interests will be taken into account when planning these experiences.

Faculty

Lauren Wang, MD
3120 Burnet Avenue Suite 406
Cincinnati, OH 45229
Office Phone: (513) 584-8600

Topics to be Covered

  1. Primary care for patients with intellectual and developmental disabilities (IDD)

  2. Mental Illness in IDD population

  3. Dementia in IDD population

  4. Medical home

  5. Transition

  6. Inclusion

  7. Autism

  8. Down Syndrome

  9. Cerebral Palsy

  10. Community resources

Resources

  • Slides from the 13th Annual Developmental Disabilities: Update for Health Professionals Conference

  • Documentary: Normal People Scare Me. Dir. Rustin Hamilton. Documentary, 2007

  • Including Samuel. Dir. Dan Habib. Documentary, 2007

  • Monica and David. Dir. Alexandra Codina. HBO Documentary, 2009. Film

  • Chicoine, Brian, and Dennis McGuire. The Guide to Good Health for Teens and Adults with Down Syndrome. Bethesda, MD: Woodbine House, 2010.

  • Chicoine, Brian, and Dennis McGuire. Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges. Bethesda, MD: Woodbine House, 2006.

  • Miller, Freeman, and Steven J Bachrach. Cerebral Palsy: A Complete Guide for Caregiving. Baltimore, MD: The Johns Hopkins University Press, 1995.

  • Lubetsky, Martin J., Benjamin L. Handen, and John J. McGonigle. Autism Spectrum Disorder. New York: Oxford University Press, Inc, 2011.

  • Tyler, Carl V., and Steve Baker. Intellectual Disabilities at Your Fingertips: A Health Care Resource. New Lenox, IL: High Tide Press, 2009.

  • Lennox, Nicholas, Robert Ware, Chris Bain, Miriam Taylor Gomez, and Sally-Ann Cooper. “Effects of health screening for adults with intellectual disabilities: a pooled analysis.” British Journal of General Practice 61 (2011): 193-196. Print.

  • Lennox, Nicholas, Christopher Bain, Therese Rey-Conde, David Purdie, Robert Bush, and Nirmala Pandeya. “Effects of a comprehensive health assessment program me for Australian adults with intellectual disability: a cluster randomized trial.” Int. J. Epidemiol. Advance Access (2007).

  • Lennox, Nicholas. “Health Guidelines for Adults with an Intellectual Disability.”

  • Schwartz, David B. Crossing the River: Creating a Conceptual Revolution in Community and Disability. Brookline Books, 1992.

  • Solomon, Andrew. Far from the Tree: Parents, Children, and the Search for Identity. New York, NY: Scribner, 2012

Goals/Objectives

  1. Describe the basic health guidelines for patients with the common developmental disabilities.

  2. Be familiar with the complex psychiatric needs of patients with disabilities.

  3. Communicate with patients with disabilities and families or care givers in a caring, respectful, and effective manner.